SWAN website logo

 

SYNDROMES WITHOUT A NAME (SWAN) - Australia

TEL: 0404 280 441

 

sm fb2  sm twitter   

givenowbutton2

  • What would you do if your child did not have a diagnosis?
  • Approximately 60% of children with syndromic features do not have a diagnosis.
  • Even with genome sequencing it is estimated that 75% of children still won't get a diagnosis.
  • Genome sequencing should be available to all our SWAN children not just those who can afford it.
  • Tell your friends about SWAN Australia
  • Volunteer your time to SWAN.
  • Donate now and support SWAN families.
  • Help spread the word that SWAN children count!

NDIS - Forum - July
Zebra Fish Tour - August
SWAN Dad's Group Gathering - August

The Genetic Alliance Australia (GA) is conducting research into the understanding of Australian patients and families on the use of genome sequencing in the healthcare system. Click on the survey link here.

Great news for Victorian SWAN families with Victorian Clinical Genetics Services receiving NATA accreditation to allow whole-exome sequencing.
Genome test to slash waiting times open up treatment options

 

Undiagnosed Children's Awareness Day 2016